LGBTInAcademia | Reisenauer Family Associate Director of External Engagement at University of Notre Dame in Notre Dame, Indiana, United States

Reisenauer Family Associate Director of External Engagement

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University of Notre Dame

Location: Notre Dame, Indiana
Category: Admin-Other Administrative Positions
Application Deadline:

Job Description

Job Title

Reisenauer Family Associate Director of External Engagement

Job Description

Welcome to the heart of academic excellence at the University of Notre Dame’s College Of Science! We are seeking a dynamic and detail-oriented individual to join our dedicated team in the role of the Reisenauer Family Associate Director of External Engagement.

Why should you apply?
In the Boler-Parseghian Center for Rare Disease in the College of Science, we pride ourselves on fostering a culture of collaboration, where teamwork is not just a concept but the way we work together to achieve common goals. Our commitment to providing an environment where every member is valued contributes to the success of our mission. Join us in this exciting journey, where the pursuit of knowledge is paired with a sense of camaraderie, making our teamwork both fulfilling and enjoyable. If you’re ready to be part of a vibrant community that values collaboration, innovation, and mutual support, we invite you to explore this rewarding opportunity with us.

We are looking for someone who brings a commitment and passion to rare diseases and helping to improve patient outcomes.

This pivotal role will manage a global network of clinicians, researchers, patient advocacy organizations, and other key stakeholders. You will be a vital resource for patient families, foster public-private partnerships, engage with policy stakeholders, and drive collaborative research and advocacy initiatives with other organizations to improve outcomes for individuals with rare diseases.

Key Responsibilities:

External Engagement and Partnerships:

Build and maintain relationships with academic institutions, clinicians, industry partners, government agencies, and patient advocacy groups.
Lead initiatives to influence and advocate for policies benefiting the rare disease community.
Pursue and manage public-private partnerships to enhance rare disease research and treatment innovation.
Establish and support global research and advocacy collaborations with other rare disease organizations.
Represent the University at national and international conferences, workshops, and meetings.
Identify and pursue funding opportunities from federal agencies, foundations, and corporate partners.

Program Development and Management:

Collaborate with Executive Directors and the Director of Patient Advocacy Education and Outreach to support the development and implementation of programs addressing gaps in rare disease research and advocacy.
Coordinate with internal and external partners to provide a comprehensive resource for the patient community.
Integrate patient perspectives into research and advocacy efforts.
Monitor and evaluate program progress, preparing reports for stakeholders.

Communication and Outreach:

Develop and execute a comprehensive communication strategy to elevate the University’s rare disease initiatives.
Oversee content creation for the Center’s websites, newsletters, and social media channels.
Organize and participate in outreach events, seminars, and symposia to promote collaboration among global experts.

Administrative and Financial Management:

Assist in budget preparation and resource allocation for the Center and the Patient Advocacy Initiative.
Support and collaborate with grant administration, including proposal preparation, submission, and reporting.
Help ensure compliance with University, state, and federal regulations.

About Us:

The Boler-Parseghian Center for Rare Diseases at the University of Notre Dame is committed to providing a “RAE of Hope” for critically ill and overlooked patients through Research, Advocacy, and Education. The Patient Advocacy Initiative is a critical aspect of the Center’s rare disease efforts, advancing advocacy and education to better serve the rare disease community and train the next generation of rare disease patient advocates. . Our mission is to lead the fight against rare diseases by integrating groundbreaking research, international collaboration, and comprehensive advocacy programs.

Join us in our mission to make a meaningful impact in the rare disease community.

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Minimum Qualifications

Bachelor’s Degree in public health, life sciences, medical research, or a related field preferred
Strong interpersonal, communication, and partnership management skills with diverse stakeholders.
Demonstrated experience in managing research projects and leading multidisciplinary teams.
Exceptional organizational and problem-solving abilities with the capability to manage multiple projects.
Passion for rare disease research and advocacy with a commitment to improving patient outcomes

Preferred Qualifications

Proven experience in external engagement and network building in healthcare or research.
In-depth understanding of the rare disease landscape and challenges faced by the community.
Advanced degree (Master’s or Ph.D.) in public health, life sciences, medical research, or a related field preferred

Department

Center for Rare & Neglected Disease (35061)

Department Website

Boler-Parseghian Center for Rare Diseases: https://crnd.nd.edu/ Patient Advocacy Initiative: https://patientadvocacy.nd.edu/

Family / Sub-Family

Academic Aff / Prgrm Admin_Business/Science

Career Stream/Level

EIC 2 Professional

Department Hiring Pay Range

Up to $83,000; commensurate with experience

Pay ID

Bi-Weekly